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More Information Coming Soon!
If you have Polycystic Kidney Disease, please know you are not alone. Polycystic kidney disease (PKD) is one of the most common, life-threatening genetic diseases, affecting thousands in America and millions worldwide. Please click below to learn more about PKD.
It is Ed's wife’s mission to help Ed’s story be heard, and for his story to be an empowerment to anyone affected by kidney diseases, to send a compelling message: it's never too early, nor too late, to fight for your life- as Ed’s wife
tells him, “Your Fight, Is Our Fight.”
Originally from Philadelphia, and currently residing in Central Florida, Ed is a 43 year old happily married man, and is an avid NFL Eagles fan. He works as the Rides Maintenance Supervisor at a local theme park, showcasing his passion for puzzles and mechanics.
Ed now faces the huge challenge of dealing with an aggressive genetic form of Polycystic Kidney Disease (PKD), a condition that also affects his entire immediate family. A year and a half ago, during a Mayo Clinic appointment, Ed's kidney function was assessed at 42%, with a prognosis of three to four years before the search for a living kidney donor would commence. Unfortunately, on Oct 19th, 2023, everything changed, and he was informed that his kidney function had dropped to 24%, prompting the need to become informed about the National Kidney Transplant List and his placement on it, once he reaches 20% kidney function.
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